'FACES OF TURNER SYNDROME:' Event raises community awareness of chromosome disorder

Madison Baxley, 5, center, joins local women with Turner syndrome during Turner Syndrome Family Fun Day on Saturday at Old Spanish Trail Park. The event, which raised awareness for the chromosomal disorder, raised almost $3,000 for Madison’s medical expenses, with 25 percent of proceeds going toward the Turner Syndrome Society of the United States. Back row, from left, are Amanda Pierce, Ashley Zackowski, Stephanie Guy and Marianne Speni. Front row: Chelsee Garrett, Marianna Kalytovska, Madi Baxley, Amber Gallo and Carrie Odom.

CRESTVIEW — The Baxleys have additional financial support to help their daughter, Madison, who has Turner syndrome.

Saturday's Turner Syndrome Family Fun Day at Old Spanish Trail Park raised almost $3,000, according to event organizer Ashley Baxley.

Most of the proceeds will benefit the 5-year-old's medical expenses, including weekly physical and occupational therapy sessions. Twenty-five percent of the amount will benefit the Turner Syndrome Society of the United States, Baxley said. 

Madison, or Madi, was born with Turner syndrome, a chromosome disorder present in one in every 2,000 female births, according to the society's website. The disorder affects growth, visual impairment, hearing loss and irregularities with the heart, liver and kidneys.

Almost 200 people attended the weekend fundraiser, which raised awareness and offered children’s activities, live music and food.

“We would like to say a huge thank you to the community for all of the support and love,” Ashley stated in an email. “It was great to see everyone come together for a cause so close to my heart.

“We will be able to fund Madi’s therapy for quite a while, and as her parents we feel so blessed, and it is a huge burden off of our shoulders."

Email News Bulletin Staff Writer Matthew Brown, follow him on Twitter or call 850-682-6524.

This article originally appeared on Crestview News Bulletin: 'FACES OF TURNER SYNDROME:' Event raises community awareness of chromosome disorder