Local walk to raise research funds for Prader-Willi Syndrome

A walk for Prader-Willi Syndrome awareness and research is scheduled. [Pixabay.com]

CRESTVIEW — Prader-Willi Syndrome, a disease that occurs in roughly one in 15,000 live births across the world, is the focus of an upcoming fundraiser.

The One Small Step Walk for Prader-Willi Syndrome is 9-11 a.m. Nov. 4 at Twin Hills Park, 100 Hathaway St. S, Crestview. Registration is not required for the walk, which is by donation only.

All proceeds go to the Foundation for Prader-Willi Research, which works to improve PWS treatments, reduce the effects of the disease, and to find a cure. Several local businesses donated raffle items and Pounders Hawaiian Grill will donate 50 percent of its proceeds to the effort when purchasers mention the PWS fundraiser during a Nov. 4 lunch or dinner purchase.

Crestview residents Gracie and Kirk Simmons are among international teams accepting donations for the event. Their daughter, Angel, 4, has PWS. The disease's main characteristic is an insatiable appetite that can cause life-threatening childhood obesity if not controlled.

Go to www.fpwr.org for more information.

This article originally appeared on Crestview News Bulletin: Local walk to raise research funds for Prader-Willi Syndrome